Navigating the system


I learned this, not through the CLSC, by the [city’s Association des personnes aidantes]. They told me, “How come he doesn’t have two partial baths. He should have two showers and two partial baths, at least in—between showers.” Then I called them, “Oh well, yeah, maybe! We will look up his case and… ” You are always, always, always… It is annoying, it is exhausting! He was in the hospital for five weeks, every morning I was making phones calls to try to find solutions for this, and for that. The CLSC, you saw how it works? Do you think this is a man who is interested in going shopping? To go for a stroll outside, to go out? To see other things? No. Once he was in the hospital and I brought him in his wheelchair to the exit. He tells me, “Go by the news stand, I want to see the colors.” Then I thought, “So he might be interested if he didn’t have to make the effort of walking because of his breathing and his Parkinson’s.” He couldn’t have a wheelchair. I had to fight to get one.

I demanded that he be seen by an occupational therapist, a physiotherapist, and a neurologist. Then they signed the papers and he had a wheelchair through the rehabilitation hospital, otherwise he wouldn’t have had one. So, I was always fighting because they were telling me, “He doesn’t need it in the house.” But look at the furniture in the house! He hangs on to the furniture, and when he doesn’t hang on to the furniture, he hangs on to me. And thus, I was finally able to have a wheelchair.

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