Advice for professionals and society

Transcript

Well, like I said, like if they could give us some support in terms of respite care, financial support, academic… advocacy—because I know if I didn’t have my mom, I wouldn’t have a clue what questions to ask at the doctor’s, what I need to know in terms of caregiving. Like, I would not know the first thing. So, I’m assuming that a lot of these youth don’t have advocacy. So, advocacy is a big thing. But I think the most important thing for the kids [is] they really want—and I keep hearing this everywhere I go—is they want the recognition that what they’re doing should be recognized by the government, that this is just as important as what an adult would be doing.

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