Financial impact


And you talked about the financial impact?

It is really very, very significant and we’ve often talked about, because I think it [is] probably about $40,000 a year after tax dollars. We keep saying wouldn’t it be wonderful if this could be something, if the tax system could try to accommodate this by at least saying “take this stuff off first, and then calculate what your base income is for tax purposes.” And when I say after tax dollars, I mean, that’s a huge amount of money.

And then, when we go on a trip—like we just came back from a week away—well, we need 24/7 coverage for when we’re away, and it’s not as though you can say “Let’s have someone pop in and observe.” You have to have someone to give Oliver his medications, to feed him, to diaper him, to bathe him, to do everything.

If you really want somebody to do the job that you want them to do—to love and care for and nurture and enjoy—you have to pay them something that at least allows them to be in the world. I mean, I’m talking like $17 an hour right. That’s not a lot of money, but after tax dollars for a family, it’s a huge amount of money. And so, I think the issues around this are on both ends of that; partly it’s the level of care that’s required and partly it’s the level of reward that people need so that they can also live in this community. And I’m not talking about buying mansions or you know having a triple digit salary or anything like that. I’m really talking just about getting by as a young person.

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