What is it like to be a caregiver?


This is the rest of your life, as well as your spouse’s life, and that makes the decisions you make very different. It’s not, “Okay, I’m going to deal with this for a year and then it’s going to be over.” It’s never over; it only gets worse. As soon as you think you’ve got it stable, the disease goes downhill. There are some things you never get used to. I think people who don’t experience it don’t understand.

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