Cathy's doctor was open to her suggestions.
Transcript
The medical profession needs to realize the experts in long COVID are the patients … Like, that’s basically been my doctor. I have been her guiding light. I have taught her about long COVID. You know? And I’ve said, you know, “Is it possible we could test this? Is it possible we could test that?” Click, click, click. She just ordered tests. And she tried to find out. She tried to help me. She didn’t know the answers. She made it pretty clear. She said “I don’t have anybody else with long COVID.” But it didn’t matter because she listened to me.
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- Getting Care for Long COVID – CathyCathy was under pressure to go back to work full time. A long COVID clinic signed her off work completely.
- Symptoms of Long COVID – CathyCathy says her symptoms "control her life."
- Additional Supports Needed for People Living with Long COVID – CathyCathy receives psychological support through workers' compensation but the support is limited and she has to fight to keep going.
- Support From Employers, Colleagues, and Worker’s Compensation Boards – CathyCathy was given the wrong information about making a claim by her employer and, initially, inappropriately limited support from WCB.
- Support From Employers, Colleagues, and Worker’s Compensation Boards – CathyCathy's boss was angry when she couldn't cope with her job full time.
- Additional Expenses – CathyCathy says she is paying out of pocket for what long COVID has done to her.
- Advice to Healthcare Providers – CathyCathy's doctor was open to her suggestions.
- Impacts on Friendships – CathyCathy notices that, after a while, people just forget about you.
- Psychosocial Impacts – CathyCathy says she has become a hermit.
- Impacts on Self and Daily Life – CathyCathy feels she has had to dumb down her personality.