Anne1 describes how a research nurse helped her get funding to pay for her medication.
Transcript
And I was involved with a study at the hospital concerning a ferritin infusion, that my ferritin levels were low, so I was on a double-blind placebo study for that. And the nurse who was overseeing that study asked – she knew I was on Entresto – but she asked, ‘Why aren’t you taken the dapagliflozin?’ And I said, ‘Well, it was a very expensive drug and I can’t afford to take it.’ And she said, ‘Well, they’re covering that now with Pharmacare if you have got a letter from your doctor.’ So she said, ‘It would help you, you should take it.’ So, based on her recommendation, I called the heart clinic and they said, ‘Sure, if you want to take it, we’ll write the letter.’ So I started taking that. I don’t know whether it’s from the change in medication or possibly the ferritin infusions, but I do have way more energy than I used to have in 2021. So my life now is good.
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- Finding Information & Cardiac Rehab – Anne1Anne1 regained her strength and confidence so that she could 'push on'.
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- Care Delivery – Anne1Anne1 relies on the experts.
- Care Delivery – Anne1Anne1 feels that she was 'left hanging in the breeze'.
- Diagnosis – Anne1Anne1 questions why heart failure happened to her and questions its progression.
- Impact on Work, School, Finances – Anne1Anne1 also speaks positively about her boss who supported her by letting her leave work when she became too fatigued to continue.