Naomi describes her experiences with a VAD.
Transcript
Eighty five percent of the time when people have LVADS [they] it’s a bridge to transplant. They go from LVAD to transplant list to transplant but they were hoping that because I’m so young otherwise healthy I bounced back a little bit the first time like I had recovered from the whole June July incident but this time they were like ‘ok we’re cautiously hoping that your heart will heal’.
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- Stigma & Gender Bias – NaomiNaomi expresses the need for age-appropriate resources.
- Mental Health & Emotional Support – NaomiNaomi describes role changes and difficulties within her family as a result of her illness.
- Mental Health & Emotional Support – NaomiHaving access to a psychologist on her care team was extremely helpful to Naomi.
- Finding Support – NaomiNaomi stresses the importance of online support and meeting other heart failure patients.
- Finding Support – NaomiNaomi gives thanks for her friends who continued to treat her as normal despite her illness.
- Access – NaomiNaomi feels that poor communication caused delays in her care because she was transferred back and forth between two hospitals.
- Diagnosis – NaomiNaomi learned she had heart failure by reading it on a whiteboard.
- Impact on Work, School, Finances – NaomiNaomi has decided to switch career paths due to her heart journey.
- Impact on Work, School, Finances – NaomiNaomi talks about how she felt not graduating with her class.
- Impact on Work, School, Finances – NaomiNaomi shares how her employer created a part time position to meet her needs.