Tara speaks to the desire to share information and collaborate with healthcare providers.

Transcript

I spent four or five hours in an MRI machine and I wanted to know the results. And when I came out, they were like, well, it’s just what we thought. I’m like, what were you thinking. I was like desperate for information. So, when you have a test, I was desperate for that stuff, I need something concrete to start piecing the – there were puzzle pieces everywhere. And I was trying desperately to put something together. And I feel like the medical community could put one or two pieces together for me, as I start to build this new puzzle, complete, like my new life. They could have put a couple of puzzles there together. And I understand that everybody is doing this at a different speed. And information isn’t always a friend. But I was like, knowledge thirsty and I wanted to know what was going on. But, like I said, I just didn’t know. So, then I went to the internet and then you get freaked out and so yeah, I just don’t think, I think we want to empower the patients so that they have this knowledge and then they can go forth and be the ones in charge. 

Instead of keeping the knowledge, and me having to go back to the medical professionals to ask all the questions. Like how about you ask me questions that are about me. Because at the time you’re the – at the time when I was in ICU, they were the experts for sure. And they are still the experts. But I’m the expert on me. And so, if you’re the expert on heart failure, and I’m the expert on me, why don’t we meet somewhere in the middle and we can talk about how to best treat me in that.

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