Coping Strategies
Women living with heart failure (HF) in this study told us about some of the coping strategies, skills and practices, they adopted to to help manage their symptoms and to feel better and in more in control of their lives. Following medical advice, watching diet, exercise, learning to pace activity and monitor HF symptoms, along with managing stress by using breathing and mindfulness methods, were all listed as important ways that a woman could help herself. Cardiac rehabilitation programs often taught these skills, as well as provided information about HF and how to live with it [see our page on Finding Information & Cardiac Rehab]. Women talked about the clear connection between their mental health and learning how to cope with their condition on their own and use self-care approaches to manage their mood and attitude [see our pages on Mental Health & Emotional Support and Self-care – Maintaining Your Own Well-being].
Follow Medical Advice
Adopting ‘heart healthy’ behaviours included quitting smoking, taking medications as directed, following up with their medical teams and adhering to diet and fluid intake guidance. Several women that we spoke with encouraged others to adopt heart healthy behaviours, to work with medical professionals to monitor and evaluate their health and current treatment plan. Jennifer said that she would encourage other women with heart failure “to do their best to obviously, you know, take care of their health and see their health care professionals and go to the doctors’ appointments and do their best for them, themselves.”
Lois stressed the importance of knowing your meds and taking them as instructed.
Transcript
And I also think it’s good to know your meds and what they do for you because I didn’t – well I kind of did but I was on something – I was on two meds for a very long time with one particular cardiologist and then when the other […]
Anne1 encourages women with heart failure to listen to their doctors and follow their advice.
Transcript
Listen to your doctor. Hopefully that you have a cardiologist and not just a GP. Because I think your GP can be an excellent resource – I’ve been lucky with the GPs that I have had, I don’t know about this new one – but there are many GPs that […]
Dietary and Fluid Management
Making healthy dietary choices and managing fluids was highlighted by many women with HF as essential to their well-being. Grocery shopping and learning to read food labels and prepare meals without salt were ways that women could assume more control over their lives and health. Managing diet and liquids allowed women to control water retention (or edema) with less reliance on medications. Lori talks about how she looked after her diet. “I used to do all my cooking and my cooking was always without salt. I used spices, no salt because I was on salt restriction and fluid restriction, and I’ve always made my own food without the salt and always measured my fluid intake. Then, at times, I measure my fluid outtake when I’m really puffy, but I know how to do that and I know what to watch for. Some people don’t have that luxury.”
Susan1 said managing her diet and her attitude helped her to cope.
Transcript
And I remember meeting with you know dieticians and whatnot. And talking about you know how to reduce the fluid retention. So through managing you know salt, diet, etcetera. And so I kind of embraced the whole thing. And my attitude has always been OK, this is the situation you’re […]
Susan2's biggest lifestyle change was dietary changes - watching sodium and potassium.
Transcript
The biggest lifestyle change has actually been happening in the last couple of years because I really, really, really have to be careful of my sodium and potassium. So dietary changes have really become important. And my wonderful doctors at Toronto are very much on my case about that, through […]
Following a heart healthy diet can be complicated by other health conditions. Lillian spoke about how undergoing cancer treatment required her to balance the needs of her heart failure management with her cancer treatment objectives.
Lillian sought dietician counselling from cancer care, as it was not offered by cardiac care.
Transcript
They send you like some PDF forms about how to read food labels. But because I’m connected with a cancer centre, I was able to actually talk to a dietitian, but I wouldn’t have been able to through cardiac rehab. So I was having some problems because the fluid restrictions […]
Monitoring Symptoms and Activity Pacing
Pacing is a self-care approach that balances activity and rest so that the person can conserve the energy to do what is important to them and avoid triggering HF symptoms. Some of our women did this informally, learning by trial and error while others were formally taught these techniques in rehabilitation programs. Some women found it difficult to accept the adjustment to a slower paced life. Others reported that being able to identify their symptoms very specifically, made them more respected partners on their health care team.
Barbara described how she learned to monitor her own symptoms: “I started to recognize when my heart was beating too hard when… because as soon as my heart starts beating too hard I can feel it in my neck and that’s my cue to – to sit down and recover, if you will.”
Barbara talks about journaling to identify her symptoms.
Transcript
I went to my cardiologist. You know I – one of the things that I was warned about at the very beginning was not to Google it, right? [Sighs] I don’t know; that’s kind of a plus and a minus, right? When I first had COPD or when I was […]
Lillian explains 'spoon theory' – a way to think about pacing and energy conservation.
Transcript
Well, it’s like this jar of spoons is your energy and you start the day with this jar of spoons. And then everything you do takes out a spoon. And you have to try to end up the end of the day with enough spoons, like with still spoons for […]
Anne1 gradually increased her daily walks to get stronger.
Transcript
I started out walking, just walking slowly around the block and then walking a little more quickly. So from years of working out, it’s easy to pace yourself. I knew what I wanted to do and I was used to, you know, when you get tired, well, you slow down.
Lori talks about how learning to pace activity can be trial and error.
Transcript
Now if you ask me tomorrow, tomorrow might be a great day and I’m having the day of my life, and I can do it all for myself. My problem is I’m a Type A personality so when I feel good I kind of overdo it and then I pay […]
Exercise and Fitness
Being physically active and getting regular daily exercise was also mentioned as both important for regaining strength and mobility, but also to manage stress. Sharon1 works out “three days a week for one hour with a private trainer. I did way before – way way way before I had issues and I’m still doing it. I take it quite seriously.” Louise walks to manage her anxiety as well as keep fit “I can say that yes, I have anxiety because it’s more the unknown than the known. I can say yes, I get depressed, but I talk myself out of it as fast as I can you know? It’s like ‘Let’s go walking’.”
Using a Fitbit allows Louise to set walking goals and monitor her heart rate.
Written testimony
Disabled with Lupus, I’m limited in the activities I can do. I happened to buy a Fitbit the previous summer to encourage me to walk. When my cardiologist told me that I had Heart Failure in April 2020, I was stunned. I knew that all I could do was walk. I knew my Fitbit would tell me how I was doing, so I set a little goal to do 2,000 steps a day. I was feeling fine, and changed it fairly soon to 5,000 a day, and then 7,500. I could see my steps on the watch every day, and noticed that I could also see my heart rate as I walked. Something I had never thought about. I was amazed at what technology can do.
When COVID hit, many people looked for alternatives to the gym, myself not included. I heard about an online challenge that one could do and receive a medal on completion. I could choose a distance in a variety of countries, and also set the timeframe. The app would download my activity daily and show my progress. I needed to be motivated and accountable, so I chose a route and signed up. Yes, of course I thought I could walk the 1332km Ring Road around Iceland in one year! It’s now a work in progress. I never realized how important my walking would be in keeping me alive.
Lise adapted her approach to exercise and works within her limitations.
Transcript
I found one thing with heart failure is that I – you’re always told what you can’t do, can’t do, can’t do, can’t do, can’t do and that’s so hard to deal with first too. All of a sudden, it’s like OK, I’ve got my hiking taken away from me. […]
Susan1 talks about how diet and exercise helped her cope with waiting for a heart transplant.
Transcript
And so this whole time you know, I’m trying to manage my diet and stay positive. And you know, living with this congestive heart failure. One thing that I found really helpful was to swim. And so I made my meal preparation a big focus of my day so that […]
Meditation and Breathing
Using mindfulness techniques like meditation and breathing were used by several women to manage symptoms and feel better, but these skills take practice and time to adopt.
Lise uses meditation to manage pain and anxiety.
Transcript
I’ve been doing this for like I said three years I’ve been in the heart failure and I swear to God I’m learning slowly. In the hospital whenever they put IVs in, they couldn’t get the IVs in me. And so they go back and forth, back and forth and […]
Barbara learned how to use breathing to manage her symptoms and anxiety.
Transcript
I learned most of what I know from respiratory rehab. I have attended three or four sessions of respiratory rehab, especially during COVID. Since everything was virtual it was easier to join, and so different people teach you different things and the last time that I was in rehab they […]