Carrie 1 needs help at home but doesn't qualify for home care.

Transcript

I’ve attempted to get homecare and it’s been a miserable experience. They don’t understand that an episodic disability, they don’t understand that some days, I can walk to make meals and some days I can’t. They don’t understand that if I use my energy to do laundry, then I can’t make supper. And, so, if I could have someone come in and do my laundry, then I could cook for myself, for example, or vice versa. But they don’t understand that. So they have all these tools to measure you at and they’re like, “But you look fine.” And I’m like, “Yes, but I’m not.” And so it’s been a lot of fighting with the healthcare system … I think a lot of the problem is that long COVID and other post infectious illnesses, I mean, we just don’t fall into the right categories for home care. And it’s, the evaluations don’t pick up on our disabilities as well. And the supports aren’t there.

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