Cher would like to be able to sit up so she could, more easily, participate in family life.
Transcript
Right now, our goal – my husband and I’s goal, is to get me to a place where I can sit for a period of time, so that I can get a wheelchair, so that I can rejoin my family and my community. Right now, every birthday – my husband graduated from school, and it all has to be either virtual, or the whole family’s on my bed. And we turn the bed into the dining table. So I’d really like for us to be able to live a family life, and not have them always having to come up into my room. And, you know, it’s not very big, can’t have lots of people over; even if I could handle having people over, I couldn’t do it. So we’re right now working on – I drink salt water every day, a certain amount of salt water, because that’s what you need for POTS. And I have compression stockings, and compression abdominal binder, and trying to do all of the things that I can do to make it so that I can sit up without crashing.
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- Advice to Others Living With Long COVID – CherCher wishes that she had stopped working sooner than she did.
- People With Long COVID Advocating for Themselves – CherCher had to educate her doctor about long COVID.
- Impacts on Children and Parenting – CherCher is bedbound but now has more time and attention for her children.
- Impacts on Partners and Households – CherCher is bedbound and this has caused tensions between her and her husband.
- Impacts on Self and Daily Life – CherCher was confronted with the idea of permanent disability during an online support session.
- Impacts on Self and Daily Life – CherCher's life has been significantly reduced by long COVID.
- Recognizing the Start of Long COVID – CherCher tried to carry on working but eventually found it impossible.