Jennifer2 wishes that healthcare providers would be more straightforward when talking about her future.
Transcript
At least tell us like it is and tell us, “You know what, things are not going to get better.” That’s OK, tell us … You know, it’s just like when they tell a terminally ill patient, “There’s nothing more we can do for you,” just tell us. You need to move on. What I don’t like is how, you know, you have to kind of read between the lines to figure out, “I see, so they haven’t suggested this, they haven’t suggested that.” Like it’s difficult and although it would be difficult, just I like to be told specifically, “This is it and just learn to live with it.” So when they send me to rehab for example, not with the idea that this is so I can go back to my old life, it’s so that I can learn to cope with the current one that I do have, that kind of rehab.
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- Advice to Policy Makers – Jennifer2Jennifer2 says insurance companies should be required to accept long COVID as a diagnosis.
- Support From Family, Friends, Communities – Jennifer2Jennifer2 now avoids people who put her under pressure to be well.
- Impacts on Work and Career – Jennifer2Jennifer2 is a lawyer. She decided to retire because she feared that she would make serious mistakes at work.
- Coping Strategies and Self Care – Jennifer2Jennifer2 says "You have to accept how vulnerable you are."
- Advice to Healthcare Providers – Jennifer2Jennifer2 wishes that healthcare providers would be more straightforward when talking about her future.
- Impacts on Partners and Households – Jennifer2Jennifer2 says she and her husband can no longer have the active life they used to have.