Dawn’s research team finds patient partners by reaching out to colleagues or support groups
Transcript
So we recruit patients and caregivers by word of mouth, among the current team members. So depending on which team I’m working on, we talk about is anyone aware of a patient or caregiver that would be good to bring onto our team? And usually it tends to be more the clinicians that have a better sense of who could be brought onto the team. Another way that we’ve done it in the past is that we’ve also gone to support groups for a specific type of diagnosis and we then look at support group leaders to find out through the support groups if there’s someone that can participate on the team.
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- Supports needed – DawnThe research process, as well as people’s roles and responsibilities, should be explained from the outset. Dawn thinks this would help prepare everyone for engagement.
- Skills for partnership – DawnMaxime, Cathy and Dawn think the most important skill for patients is being able to share their patient experience
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- Developing partnerships – DawnDawn’s research team finds patient partners by reaching out to colleagues or support groups