Welcome by Dr. Susan Law

Dr. Susan Law, team lead for the Health Experiences research group in Canada, speaks about the initiative and what you can expect when you visit the website.

Institute of Health Policy, Managment and Evaluation - University of Toronto
Trillium Health Partners | Intitute for better health

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Family Caregiving

Breast Cancer in Women

Living with an Amputation

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Heart Failure in Women

Long COVID

We’re on instagram! https://www.instagram.com/healthexperiencescanada/

📣We are recruiting!! We are launching a study to learn about people's experiences living with long-COVID. Please share and/or contact our team if you are interested in sharing your story with us👋
📣We are recruiting!! We are launching a study to learn about people's experiences living with long-COVID. Please share and/or contact our team if you are interested in sharing your story with us👋
Some people may wonder about the lessons that can be learned when exploring our modules and for whom these lessons may benefit. We have created the Patient-Researcher Partnership module for anyone who might be interested in hearing about others’ experiences of patient-researcher partnerships. This module can be used to: ~Promote learning from real experiences ~Learn how to prepare for such partnerships ~Understand the benefits and challenges of patient-researcher partnerships ~Support education and training to create more meaningful partnerships To access our patient-partner module, visit the link in our bio! #livedexperience #research #qualitativeresearch #healthcare #diseaseexpertise #diseaseinformation #patientexperience #patientpartner #partnership #patientexperience #healthexperiencescanada
Some people may wonder about the lessons that can be learned when exploring our modules and for whom these lessons may benefit. We have created the Patient-Researcher Partnership module for anyone who might be interested in hearing about others’ experiences of patient-researcher partnerships. This module can be used to: ~Promote learning from real experiences ~Learn how to prepare for such partnerships ~Understand the benefits and challenges of patient-researcher partnerships ~Support education and training to create more meaningful partnerships To access our patient-partner module, visit the link in our bio! #livedexperience #research #qualitativeresearch #healthcare #diseaseexpertise #diseaseinformation #patientexperience #patientpartner #partnership #patientexperience #healthexperiencescanada
In her interview, Erin talks about how she coped with underestimated symptoms and judgemental attitudes towards her perinatal mental health challenges. Erin discusses the different resources that she utilized to improve her mental health but explains that a support group hosted by her local hospital ultimately led to her mental health improvements. To hear more of Erin’s interview or about other women who experienced perinatal mental health challenges, please visit https://healthexperiences.ca/perinatal-mental-health/mental-health-and-pregnancy. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #perinatalhealth #perinatalmentalhealth #perinatalanxiety #perinatalmooddisorders #perinataleducation #postpartumdepression #pregnancy #mentalhealth #postpartum
In her interview, Erin talks about how she coped with underestimated symptoms and judgemental attitudes towards her perinatal mental health challenges. Erin discusses the different resources that she utilized to improve her mental health but explains that a support group hosted by her local hospital ultimately led to her mental health improvements. To hear more of Erin’s interview or about other women who experienced perinatal mental health challenges, please visit https://healthexperiences.ca/perinatal-mental-health/mental-health-and-pregnancy. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #perinatalhealth #perinatalmentalhealth #perinatalanxiety #perinatalmooddisorders #perinataleducation #postpartumdepression #pregnancy #mentalhealth #postpartum
Stéphanie was born without part of her tibia and some cartilage in one of her legs, which prevented growth. At three years of age, it was decided by health professionals and her parents that a lower limb amputation would be the best thing for her. In her interview, Stéphanie explains how well she adapted to a prosthesis and how it ultimately gave her more physical freedom. To listen to more of Stéphanie’s interview, please visit https://healthexperiences.ca/living-with-an-amputation/stephanie-lower-limb-amputation. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #healthprofessional #amputee #amputation #amputees #upperlimbamputation #healthexperiencescanada
Stéphanie was born without part of her tibia and some cartilage in one of her legs, which prevented growth. At three years of age, it was decided by health professionals and her parents that a lower limb amputation would be the best thing for her. In her interview, Stéphanie explains how well she adapted to a prosthesis and how it ultimately gave her more physical freedom. To listen to more of Stéphanie’s interview, please visit https://healthexperiences.ca/living-with-an-amputation/stephanie-lower-limb-amputation. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #healthprofessional #amputee #amputation #amputees #upperlimbamputation #healthexperiencescanada
A common theme among caregivers we interviewed was that the care recipient’s needs and capabilities changed over time. Few caregivers saw any improvement or stability in their loved one’s condition, and many described having to make adjustments alongside the disease progression. In his interview, Donovan discusses the importance of adapting to changing needs in a way that dignifies the care recipient, ultimately allowing them to make the decision. However, each caregiver adapted in different ways. To learn more about Donovan’s experience of gracefully adapting to his wife's changing needs and capabilities as a caregiver, please visit this link: https://healthexperiences.ca/family-caregiving/topics/being-a-caregiver/when-care-changes-over-time. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #youthcaregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
A common theme among caregivers we interviewed was that the care recipient’s needs and capabilities changed over time. Few caregivers saw any improvement or stability in their loved one’s condition, and many described having to make adjustments alongside the disease progression. In his interview, Donovan discusses the importance of adapting to changing needs in a way that dignifies the care recipient, ultimately allowing them to make the decision. However, each caregiver adapted in different ways. To learn more about Donovan’s experience of gracefully adapting to his wife's changing needs and capabilities as a caregiver, please visit this link: https://healthexperiences.ca/family-caregiving/topics/being-a-caregiver/when-care-changes-over-time. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #youthcaregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
In an interview with a non-status migrant living with anxiety and depression, they reflect on the anxiety caused by not having identification papers. For people living in Canada without status, the lack of identification papers is a significant barrier to healthcare and mental health services. To hear more from more about the mental health challenges Canadian newcomers with and without status face, please visit https://healthexperiences.ca/immigrant-mental-health. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #mentalhealth #mentalhealthawareness #mentalhealthmatters #immigrantstories #immigrantmentalhealth #healthexperiencescanada
In an interview with a non-status migrant living with anxiety and depression, they reflect on the anxiety caused by not having identification papers. For people living in Canada without status, the lack of identification papers is a significant barrier to healthcare and mental health services. To hear more from more about the mental health challenges Canadian newcomers with and without status face, please visit https://healthexperiences.ca/immigrant-mental-health. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #mentalhealth #mentalhealthawareness #mentalhealthmatters #immigrantstories #immigrantmentalhealth #healthexperiencescanada
At 50 years old, Ricardo underwent an upper limb amputation after discovering that he had cancer in his arm. In a serious but light-hearted interview, Ricardo discusses his experience of having an upper limb amputation with a humorous twist. To listen to Ricardo’s full interview, please visit https://healthexperiences.ca/living-with-an-amputation/ricardo-upper-limb-amputation. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #healthprofessional #amputee #amputation #amputees #upperlimbamputation #healthexperiencescanada
At 50 years old, Ricardo underwent an upper limb amputation after discovering that he had cancer in his arm. In a serious but light-hearted interview, Ricardo discusses his experience of having an upper limb amputation with a humorous twist. To listen to Ricardo’s full interview, please visit https://healthexperiences.ca/living-with-an-amputation/ricardo-upper-limb-amputation. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #healthprofessional #amputee #amputation #amputees #upperlimbamputation #healthexperiencescanada
In light of November being National Family Caregiver’s Month, we wanted to highlight the unique challenge of adapting to the new roles that family caregivers experience. The Canadian caregivers we interviewed discussed the feelings they experienced becoming a caregiver for the first time and the losses associated with adapting to a role as a caregiver for a spouse. To learn more about how caregivers have adapted to their new responsibilities, please visit https://healthexperiences.ca/family-caregiving/topics/personal-challenges-in-caregiving/adapting-to-new-roles-and-key-issues-for. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
In light of November being National Family Caregiver’s Month, we wanted to highlight the unique challenge of adapting to the new roles that family caregivers experience. The Canadian caregivers we interviewed discussed the feelings they experienced becoming a caregiver for the first time and the losses associated with adapting to a role as a caregiver for a spouse. To learn more about how caregivers have adapted to their new responsibilities, please visit https://healthexperiences.ca/family-caregiving/topics/personal-challenges-in-caregiving/adapting-to-new-roles-and-key-issues-for. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
A common misconception of family caregivers is that it is mainly rewarding and fulfilling despite the challenges and that caregivers take on their role willingly. However, caregiving can be tiring, overwhelming, and challenging. Thus, caregivers naturally experience negative feelings throughout their journey. Many caregivers we interviewed wanted to share the negative feelings they experienced to reassure others that these feelings are normal and that many others feel the same way. In Val’s interview, she described a time in an ALS support group where someone else opened-up about their negative feelings and reflected on how she felt in that moment. Caregiving is a rollercoaster of emotions, and each and every feeling is valid and normal. To hear more about the challenging emotions and feelings Canadian caregivers experience, please visit https://healthexperiences.ca/family-caregiving/topics/personal-challenges-in-caregiving/challenging-emotions-and-feelings. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
A common misconception of family caregivers is that it is mainly rewarding and fulfilling despite the challenges and that caregivers take on their role willingly. However, caregiving can be tiring, overwhelming, and challenging. Thus, caregivers naturally experience negative feelings throughout their journey. Many caregivers we interviewed wanted to share the negative feelings they experienced to reassure others that these feelings are normal and that many others feel the same way. In Val’s interview, she described a time in an ALS support group where someone else opened-up about their negative feelings and reflected on how she felt in that moment. Caregiving is a rollercoaster of emotions, and each and every feeling is valid and normal. To hear more about the challenging emotions and feelings Canadian caregivers experience, please visit https://healthexperiences.ca/family-caregiving/topics/personal-challenges-in-caregiving/challenging-emotions-and-feelings. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #healthcare #diseaseexpertise #diseaseinformation #patientexperience #caregiver #familycare #familycaregiver #familylove #love #advancecare #advancecareplanning #healthexperiencescanada
Of all the women we interviewed, most spoke highly of the care they received, with some exceptions. They appreciated health professionals who: ~Were honest and kind ~Took their time ~Were available ~Were compassionate and understanding ~Explained things well ~Made them feel like a person and not a number To see more about how women related to their healthcare professionals or tips on how to feel empowered and comfortable during healthcare appointments, please visit: https://healthexperiences.ca/breast-cancer/topics/managing-illness-and-care/relating-to-health-care-professionals. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #patientexperience #healthcare #diseaseexpertise #diseaseinformation #breastcancer #breastcancerawareness #breastcancersupport #breastcancercare #breastcancerresearch #breastcancerawarenessmonth #healthexperiencescanada
Of all the women we interviewed, most spoke highly of the care they received, with some exceptions. They appreciated health professionals who: ~Were honest and kind ~Took their time ~Were available ~Were compassionate and understanding ~Explained things well ~Made them feel like a person and not a number To see more about how women related to their healthcare professionals or tips on how to feel empowered and comfortable during healthcare appointments, please visit: https://healthexperiences.ca/breast-cancer/topics/managing-illness-and-care/relating-to-health-care-professionals. #livedexperience #research #qualitativeresearch #interviews #realpeople #realpeoplerealstories #patientexperience #healthcare #diseaseexpertise #diseaseinformation #breastcancer #breastcancerawareness #breastcancersupport #breastcancercare #breastcancerresearch #breastcancerawarenessmonth #healthexperiencescanada