Although Marie can no longer get health insurance, she and Joseph still take trips together. They think it is worth the risk
Written testimony
We are perfectly aware that, for example, we are going to Germany in the fall. Well, we are perfectly aware, I am not insurable. So, we know that maybe I will go, maybe I won’t, we don’t know. But we’ve accepted that, we’ve come to terms with that, even if we… We don’t want to keep ourselves from living in case something more serious happens to me. We agreed to make some concessions. to say, “Well okay, we will lose money”. We will lose money, that’s all. To date, it hasn’t happened. But it’s hard for me to travel because it’s tiring, you know. It takes me two days to get over it. But after that, I have to give myself a little rest period at the house or at the hotel where we are, and then after that, our itinerary each day. What we are going to visit and all that. We have to prepare ourselves.
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- Travelling, holidays and respite -Joseph and Marie,Joseph et MarieAlthough Marie can no longer get health insurance, she and Joseph still take trips together. They think it is worth the risk
- Interaction with professionals -Joseph and MarieAfter a negative encounter with a doctor at the hospital, Joseph experienced a strong emotional reaction.
- Adapting to new roles and key issues for spouses -Joseph and MarieJoseph and his wife have become much closer after a period of separation.
- Challenging emotions and feelings -Joseph and MarieAfter a negative encounter with a doctor, Joseph experienced a very strong emotional reaction
- Trying to find the right balance -Joseph and Marie,Joseph et MarieAt one point, Joseph left his wife when it became all too much for him, but they are now together again, and are working to find the right balance.
- Impact on professional life and career -Joseph and MarieJoseph received a lot of support from his employer who helped him sort out the right arrangements for him.
- Impact on professional life and career -Joseph and MarieAfter taking sick leave, Joseph decided to request early retirement at work.
- Uncovering how and why caregivers care -Joseph and Marie,Joseph et MarieJoseph wanted to do everything to reduce his wife’s suffering, although he was uncomfortable with some requests.
- Advice for other caregivers -Joseph and MarieFind help and don’t respond to everything yourself. Joseph advises others to not make the same mistake as he did.