Marc and the friend he cares for love to travel. Travelling helps them get through more difficult moments.
Transcript
Well, we like travelling abroad. We travelled a lot. And we have two trips coming up, one which is for a conference. We are involved at the international level with the mute. [My friend] is part of an international association and we participated in several conferences in Spain, Switzerland, and the United States.There is one coming up in the month of July in the United States. And it’s been a while due to the care needed for his condition; we have a project to go to France on the shore of the Mediterranean, to the Côte D’Azur. And that, that’s something that helps us get through the more difficult periods as far as his healthcare.
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- Travelling, holidays and respite – MarcMarc and the friend he cares for love to travel. Travelling helps them get through more difficult moments.
- Navigating the system – MarcIt can be “hit or miss”; sometimes Marc knocks on the right door, and other times the wrong door.
- Resources – MarcYou don’t always know where to ask for help. It would be easier if there were one single place to turn for good information, says Marc.
- Effects of care recipients’ behaviour – MarcMarc is very touched and inspired by the friend for whom he is caring.
- Trying to find the right balance – MarcMarc gives a lot of time to care for his friend, but also needs time for himself. He has learned to reconnect with himself during his free moments.
- Caring for yourself – MarcIn his experience, Marc was confronted with an existential dimension to caregiving: “Caring for someone is also suffering; it is suffering through love.”
- Financial impact – MarcMarc makes little money as a caregiver, but he is not worried. This is a choice he has made.
- Impact on health – MarcMarc lived through two periods of depression, but feels that now he has found a better equilibrium.
- The future and caregiving – MarcMarc doesn’t know what the future will bring but believes "where there is a will, there is a way."
- Providing support – MarcMarc’s friend is only able to speak with his eyes. Marc describes how this made his hospital stay more complicated.