Patients’ lived experience should be front and centre in research, according to Gillian

Transcript

Yeah, personality traits, very open, you know, you have to be open-minded, you have to be a creative thinker and allow for creativity because and we see this with service providers a lot because they’re working within the confines of a system is this tendency to say oh, that’s not possible or that can’t work, right? And it’s much more of a well, how do we go with that idea and how do we take that idea forward? And we’ll worry about some of those obstacles later; we won’t dismiss them because they’re important to hear. But it has to be at the right stage of the process. You know, as we’re moving towards implementation then those obstacles become more important but not when we’re in the brainstorming phase. Another thing I think we need is a lot of humility. The world doesn’t always operate the way we think it is and there’s a tendency for researchers to feel like we know it all or we might be closer to knowing a little bit more than other people. And I don’t think that’s it at all. If we’re really going to be honouring lived experience it’s about honouring lived experience and making sure that we recognize that not every lived experience is the same but that it needs to come front and centre as part of this process.

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