Ian suggests that researchers rethink communication with potential patient partners

Transcript

I think we have to change the way we write, the way we communicate, the way we speak. We have to really – I mean everything that we do needs to be – we need to take literacy … and health literacy is something totally separate from actual literacy, so these are – I think we need to really – really write for when we say the lay person but we’re really writing and communicating for the lay person, and maybe what we do is we engage through other avenues, like media, infographics, things like that, that could be more accessible based on – independent of what your socioeconomic status might be. 

But again, even getting people, engaging people on a conversation to ask them if they’d be interested is even – I don’t even know how we would overcome that unless we leveraged partnership with people who work with these people. So I think you can reach some of these populations through [end of video 1 at 00:33:28] networking with community organizations or agencies that actually serve these populations. Because it’s all through – you can reach them through relationships, I think, and connect to them that way. But – I mean I talk to my parents about what I do and they don’t understand and one’s a lawyer and one is a master’s teacher. And it’s communicating with them about what I do and why. It’s really hard. 

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