Claire’s feedback about nurse-patient interactions was included in orientation modules about symptom management
Transcript
I think we have a lot of assumptions as researchers, and certainly, my experience as a patient has challenged some of those assumptions, like, you know, thinking that perhaps, “This is the way we’re going to do it,” and being respectful of, “Well, actually, that may not work from a patient perspective.” And, “Well, is that actually an important question that the patient has?” So, you will never know if you’re setting your own objectives. So, I think having patients setting research priorities is incredibly important. And, in the analysis, you know, as a patient, I think I guided the analysis in the simulated calls project. I guided the analysis in a different way. So, having patients involved in the analysis, I think, is very important.
Interviewer: And just tell me what you mean by simulated calls. I’m not sure, I thought I understood, but maybe I don’t.
Okay, so, listening to a nurse providing symptom management support using symptom practice guides. So, over the phone, so, we were looking at that support and how they had incorporated or not incorporated the practice guidelines into their clinical practice. And the other thing that I really enjoyed doing was developing, or providing, feedback into a video of a nurse and a patient as a – it was a teaching video of a nurse providing symptom management support to a patient. So, being able to provide input into that interaction from a patient perspective. And then, that then went into orientation modules for nurses providing symptom management support.
Interviewer: So, really direct impact on the intervention, actually.
Yes, yeah.
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