Rowdyneko notices that people don’t call her or come over any more. She suggests that family and friends stay in contact.
Transcript
Other caregivers, I’d say avoid it like the plague. Oh, it’s probably the worst thing I’ve ever done. It’s just because it’s so much not my personality. I shouldn’t say that; it’s totally discombobulated my life. I think for friends and family though, to stay in contact because sometimes I just don’t have time, or sometimes I am just feeling so overwhelmed by things that I go to ground. Like, I just don’t have the energy to phone someone. I don’t have the energy to reach out to someone, but on the other hand, if someone was to pop over and make me tea, or phone me up and say, “Let’s go for a walk,” I would be probably really happy to do that. But I don’t find people do that. Maybe it’s just the people I hang out with. And that could be because, again, I’ve always been a fiercely independent person and I think maybe some people are afraid to step past that now because they know I’m really independent.
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- Resources – RowdynekoRowdyneko told other patients about a free door-to-door transportation service to use instead of private ambulances.
- Providing support – RowdynekoAt times, Rowdyneko was asked to do medical tasks that she did not feel comfortable doing.
- Advice for friends and family – RowdynekoRowdyneko notices that people don’t call her or come over any more. She suggests that family and friends stay in contact.
- Financial impact 2 – RowdynekoRowdyneko is thankful that her husband’s medications are covered by the palliative pharmacare program.
- Financial impact – RowdynekoWithout extended medical coverage, Rowdyneko would have been under much more financial pressure.
- Uncovering how and why caregivers care – RowdynekoRowdyneko would love it if caregiving were fun, or brought her closer to her husband. Unfortunately, this is not the case for her.
- Travelling, holidays and respite – RowdynekoWhen Rowdyneko leaves for a cruise, her family tries not to disturb her.
- Support from family and friends – RowdynekoRowdyneko doesn't do the caregiving willingly, but her son surprises her every day with his unselfish support.
- Society and caregiving – RowdynekoRowdyneko has noticed that younger caregivers often have to stop working. There are not enough resources or support for them.
- Interaction with professionals – RowdynekoBeing expected to do things that you are unable to do is frustrating for Rowdyneko.