Researchers can assume a lot about process and priorities, but Claire, a patient-researcher, knows that not all may be feasible from a patient’s perspective.

Transcript

I think we have a lot of assumptions as researchers, and certainly, my experience as a patient has challenged some of those assumptions, like, you know, thinking that perhaps, “This is the way we’re going to do it,” and being respectful of, “Well, actually, that may not work from a patient perspective.” And, “Well, is that actually an important question that the patient has?” So, you will never know if you’re setting your own objectives. So, I think having patients setting research priorities is incredibly important.

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