Transcript
Just the, you know, I think we have a lot of assumptions as researchers, and certainly, my experience as a patient has challenged some of those assumptions, like, you know, thinking that perhaps, “This is the way we’re going to do it,” and being respectful of, “Well, actually, that may not work from a patient perspective.” And, “Well, is that actually an important question that the patient has?” So, you will never know if you’re setting your own objectives. So, I think having patients setting research priorities is incredibly important. And, in the analysis, you know, as a patient, I think I guided the analysis in the simulated calls project. I guided the analysis in a different way. So, having patients involved in the analysis, I think, is very important.
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- Impact on Research – ClaireResearchers can assume a lot about process and priorities, but Claire, a patient-researcher, knows that not all may be feasible from a patient’s perspective.
- Diversity – ClaireClaire feels that researchers should reflect on how they can be more inclusive
- Defining Partnerships – ClairePractices and experiences with partnerships are highly varied, from Claire’s interactions with others involved in partnerships
- Balancing time and commitments – ClaireWithout flexibility, Claire would not have been able to participate
- Relationship building – ClaireResearchers should check-in with patients and ask how they are doing, suggests Claire
- Developing partnerships – ClaireAcademic and hospital environments can be intimidating. Claire advises researchers to engage with patients in places where they feel comfortable
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