Patient engagement can evolve into a full partnership, suggests Dawn
Transcript
So for patient engagement, I actually like the Carman framework that is about the different levels of patient engagement. And when I re-wrote the framework, I actually added a line for – as part of a research team, where if that’s full partnership, they would actually be a member of the research team. And so I think about there being various levels of engagement within the health system, individual decision-making, organizational levels, policy levels, as part of the research team, and then strengths of engagement meaning that there could be a low level of engagement where you consult the patients around what would be the key research questions that we need to move forward with, all the way to full partnership where they’re part of the research team in their role as the patient on the team.
More from: Dawn
More content
- Impact on Research – DawnIn Dawn’s project, engaging patients highlighted just how different the perspective of the patient can be from that of health professionals.
- Skills for Partnership – Dawn
- Supports needed – DawnThe research process, as well as people’s roles and responsibilities, should be explained from the outset. Dawn thinks this would help prepare everyone for engagement.
- Skills for partnership – DawnMaxime, Cathy and Dawn think the most important skill for patients is being able to share their patient experience
- Relationship building – DawnConnecting with patients and learning more about one another has been helpful for Dawn
- Defining partnerships – DawnPatient engagement can evolve into a full partnership, suggests Dawn
- Developing partnerships – DawnDawn’s research team finds patient partners by reaching out to colleagues or support groups