It is important that researchers and patients are learning together, from Emma’s perspective.

Transcript

Interviewer: So you also mentioned training as sort of research training and resources, is there any kind of other training you can think of or specific resources ideally that you would want to see to help support researchers?

I mean I think I mentioned the self-awareness thing, I think that’s an opportunity for training. So like when I worked in community-based research we had a training for all new staff and also for any new patient, or sorry community members, who were on research teams. And so even the training itself had different members in the room but we were all at the same table learning the same stuff. And I think that was really important because it was kind of like demonstrating what we were learning about and what we’re going to try to do. So that was really helpful. And just that kind of basic training around, you know, what does it mean to be a researcher, what kind of power does that potentially come with? And I think basic training on being aware of that is hugely important to be actually able to partner with patients or community members or anybody.

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