More diversity is needed in the kind of patients involved in research suggests Maureen
Transcript
My hope – I don’t think it’s going to go backwards, like I think it’s here to stay. I guess my hope is that I really would like to see more diversity. I’d like to see more myths dispelled about what it takes to get involved so that people who we really need to hear from are really heard – I think that’s really important. And to do that, like I said, we have to really have an understanding of how people can contribute and how their life experiences are valuable to all the members of the research team, I think that’s really important. I think that’s where we’re going, but it certainly – it’s a very exciting time. Like it’s very exciting to be involved in something that’s changing all the time and evolving but just a lot of growing pains.
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- Relationship building – MaureenMeeting face-to-face at the beginning was important for Maureen to make a connection
- Supports Needed – Maureen
- Supports needed – MaureenFor Maureen, different levels of training, peer-to-peer learning, and training responsive to patients’ needs are important.
- Looking forward – MaureenMore diversity is needed in the kind of patients involved in research suggests Maureen
- Diversity – Maureen (2)Engagement is here to stay, but Maureen acknowledges some growing pains to work through as yet.
- Diversity – MaureenMisconceptions about patient partnership, Maureen feels, might limit the types of patients who get involved
- Advice to others – MaureenYou can start small, suggested Maureen, to see if partnering in research is something you enjoy
- Skills for partnership – MaureenFor Maureen, it’s important for researchers to dispel myths about patients needing to have a scientific background to participate in research.
- Relationship building – Maureen (2)Meeting face-to-face at the beginning was important for Maureen to make a connection
- Role determination – MaureenMaureen worries about the professionalization of the patient partner role