When her doctor told her she needed to start taking holidays, Marlyn found it much easier to take regular respite.
Transcript
The doctor started telling me I had to start taking holidays myself. I couldn’t be thinking about not doing it because I felt guilty or because it was difficult. And the longer a holiday that I take, the more work and preparation and arrangements I have to set in place in order to go away. But the doctor made a point of saying “You need to get away at least every three months.” And that was good to hear because I came back and I said to my husband, “I have to get away every three months.” And he was, “Oh, that much? That often?” And I kind of thought, “Ooh”—guilty. But the fact that it had come from the doctor made me more able to say it without feeling too guilty about it. And I really came to believe that in order to survive this, and not kind of throw up my hands and say, “I can’t deal with this anymore,” I had to be able to do some of the things that I really wanted to do and wasn’t able to do with him anymore. So, I’ve started going off on some other trips—not just visiting my kids but… I went with my brother on a couple of short trips in the past couple of years down south in the winter—just to get away in the winter and just to try and do something that felt normal.
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- Effects of care recipients’ behaviour -MarlynMaryln noticed that care recipients can get caught up in their own needs and not see the impact they have on the people around them.
- Providing Support – MarlynMarlyn had to find a balance between the physical care her husband required and her own limits in performing these kinds of tasks.
- Resources – MarlynMarlyn strongly suggest that caregivers join a support group: you will find people who understand how you feel.
- Interaction with professionals – MarlynWhen her doctor told her she needed to start taking holidays, Marlyn found it much easier to take regular respite.
- Home care and live-in caregivers – Marlyn (sound)Overall Marlyn has good experiences with the people that come to her home to care for her husband.
- Home care and live-in caregivers – MarlynAlthough Marlyn is very satisfied with the homecare services, last minute cancellations can leave her in a difficult position.
- Challenging emotions and feelings – MarlynWhereas outsiders might judge you, Marlyn learned that other caregivers understood her frustrations.
- Impact on health – MarlynTwo years ago, Marlyn hurt her back helping her husband; she still lives with the effects of the injury.
- The future and caregiving -MarlynMarlyn and her husband designed their home to meet their future needs. She is amazed, however, to see how many things could have been better adapted to her husband's disability.
- Providing support – MarlynMarlyn realises, during the interview, that problem solving is a big part of caregiving.