It can be very stressful for Christiane to pay all her bills.
Transcript
When you receive the bills, by the time you get an answer for the cost exemption, you receive bills! The first bill was from January 10 to 30, 31. The month of February was $1711.13. I almost had $4000 in expenses. Eventually you say, “How will I make ends meet with this?” Up to a point that when I got the answer, I looked at the letter; I said, “I don’t believe this.” I called. The man who answered the phone told me “Give me your name and the person who did the calculation will call you back.” Within 10 minutes, the man called me back. Then he tells me “Yes, yes, that’s it.” He said, “The amount is correct—$347.58.” I burst into tears. But it’s good news. I said, “It is very good news, but I have been stressed for the past month and a half because I didn’t know what was going to happen.” I said, “We have no idea how much money they will take.” I said, “They even suggested that I may have to go on welfare.” At 62 years old, I would not accept to be on welfare. It’s quite a drop. He explained the calculation to me. I said, “It’s the same for everybody”, and he said, “Yes”. It’s so stupid. They take both revenues, take off $1200 for the couple, then after that they take 25%, but if they had told me that in the beginning, I would have had an idea. I wouldn’t have been so stressed, because I didn’t even know if I was going to be able to pay my rent. My children were thinking of contributing to give me the balance of the money to pay my rent. It’s not a joke. My children are not responsible for this; it’s not even their father. I find that we are not supported, really not. We are left in the cold. If you manage, good. If not, well…
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- Legal issues -ChristianeGetting a mandate in case of incapacity costs a lot of money, which Christiane is unable to pay at this moment.
- The future and caregiving – ChristianeChristiane knows she needs a break; she worries about what will happen to her husband if she gets sick.
- Support from family and friends – ChristianeChristiane finds it difficult to ask friends for help, especially since she is not able to pay them.
- Social impact and lifestyle changes – ChristianeChristiane feels isolated because it seems that her friends don’t want to visit anymore.
- Resources – ChristianeThanks to arrangements made possible by her support group, Christiane is able to attend conferences and other activities organized by the caregivers group.
- Providing support – ChristianeOne weekend, Christiane had to move her husband in bed. And with her back problem, she wonders what might happen if she had to do it again.
- Navigating the system – ChristianeChristiane had to make many phone calls to arrange for things like a wheelchair and home care support.
- Interaction with professionals – ChristianeChristiane told her social worker about a solution she found herself.
- Hospitals and facilities (2) – ChristianeChristiane has to check-up regularly on how the facility is caring for her husband.
- Hospitals and facilities – ChristianeChristiane struggled with the decision to move her husband to a facility; her parents helped her make the decision.