Airplanes are not adequately accessible, so Claire and her husband stopped using air travel.
Transcript
Not much beautiful about getting on an airplane besides being able to get somewhere. But airplanes are not accessible and boy I wish they would be. Buses could be, but for some reason, we’re told airplanes “can’t make it happen”. So if you use a power wheelchair and you can’t independently transfer out of your wheelchair, then the experience of trying to travel would be weeks of preparation ahead of time. And actually having specialized equipment made so that Luke had something sitting under his feet so his feet weren’t hanging, something to keep, hold his head up in the seat in the airplane. And when you have equipment that Luke’s life depends on like ventilation equipment and that kind of thing, packing becomes a whole new journey. Because there’s many things that you really can’t forget, right? And I think that’s part of my learning and my perspective again. I mean, I used to complain that “Oh, I forgot my bathing suit,” if I went on a trip. And now when I hear people complain I just think, “Oh my God. If you can buy it when you get there and it’s not going to mean life or death, it’s really okay.”
So the airlines are not—or I guess they’re used to having people with disabilities fly—but our experience is that it’s always with a bit of a sigh, because it’s a lot of work for them to…and so Luke and I actually joke—since we’ve flown a few times in the last few years—if we’re just going out to pick up a friend who’s flying into town or whatever, we always joke that we’re going to just drive by the ticket counters for the airlines just to scare them a little bit.
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- Trying to find the right balance – ClaireClaire and Luke are good at strategizing; they always try to find new ways to make their lives more relaxed.
- Travelling, holidays and respite – ClaireAirplanes are not adequately accessible, so Claire and her husband stopped using air travel.
- Social impact and lifestyle changes – ClaireClaire and Luke are not always able to attend get-togethers with family and friends because their homes are not accessible.
- Advice for professionals and society 2 – ClaireClaire believes that policies and practice regarding financial and other support for caregivers must be flexible from person to person.
- Advice for professionals and society – ClaireClaire suggests that health professionals ask for the caregivers’ perspective. Some care decisions may impact their lives in ways you may not realize.
- Advice for friends and family – ClaireTry to find an alternative solution if it is not possible for the care recipient come over. Claire recommends having a meal somewhere else, or making dinner yourself and bringing it over.
- Becoming a caregiver – ClaireClaire and Luke got married two years after meeting online. Claire learned of Luke’s disability before meeting him in person