Kai suggests that healthcare professionals get to know their patient and family, especially when visiting their home. Get to know their likes and dislikes, and how they like things to be done.
Transcript
I think every youth caregiver has their difficult moments with the medical, like the doctors and hospitals. I understand that the home healthcare network is under a lot of stress and I respect that, but I think when you come into somebody’s space there has to be tremendous respect. Especially… and again, it’s really hard to know when you’re coming into a place where there’s a youth caregiver, because youth caregivers, there’s no mark on us […]. We are an invisible minority in the mainstream Canadian society. But when you do come into somebody’s home and you know that there’s going to be youth, like you just treat it as respectfully as possible, and if possible get to know your patient—their likes or dislikes like I just mentioned—like, how they like a procedure done because they’ve already had it done probably several times before you’ve come. So, get to know how they like things to be done.
More from: Kai
More content
- When care changes over time – Kai Kai’s father decided he would go off the dialysis. Kai describes the positive effects of this decision.
- Society and caregiving 2 – KaiKai was a youth caregiver. He would like the government to recognize that youth are often responsible for caring for someone too.
- Society and caregiving – KaiWhen Kai got a job, he didn’t tell his employer or colleagues that his father was ill. You don’t want to let everyone know that your family is not perfect.
- Resources – KaiKai became involved in a pilot project to raise awareness about youth caregiving and helped to create a youth support group.
- Providing support – KaiDuring a week-long training session, Kai and his mother learned to run the dialysis machine overnight.
- Personal growth and transformation – KaiAlthough caregiving is hard, Kai thinks we should embrace the experience and learn from it.
- Interaction with professionals 2 – KaiKai suggests that healthcare professionals get to know their patient and family, especially when visiting their home. Get to know their likes and dislikes, and how they like things to be done.
- Interaction with professionals – KaiIn one of the most difficult moments, Kai and his father met an excellent doctor who was honest and made Kai feel included.
- Impact on professional life and career 2 – KaiKai became involved in a video project to raise awareness for youth caregiving, and helped start a youth support group.
- Impact on professional life and career – KaiKai started working to help out financially, but was so distracted by the situation at home that he was eventually fired.