Impact on Research – Annette


Engaging patients ensured that research questions were more relevant in Annette’s project.


So that we have more impact that way in sort of – in ensuring that people really adopt a patient-oriented research approach. So they really understand that in – that this is an approach that ensures that your questions are relevant, that the ways you’re doing your research are feasible and meaningful for patients, that the outcomes you’re measuring are not only standardised and quantitative and what typical researchers use, but actually have relevance to those who live the experience that you’re trying to study. So that the outcome measures are really the most relevant and most meaningful for the patient and their families, and that the interventions really are more likely to have an impact.

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