Karen prefers using the term ‘person of lived experience’ for patient partners

Transcript

Patient partner, patient engaged research, the lived experience piece, all those are comfortable for me. I may often speak, saying I’m a person of lived experience, because, my lived experience is significant in so many different areas. And, in one lifetime, it’s incredible how many places you cross. I come from a place saying that I have lived experience of mental health and addiction. But, I have lived experience with cancer at a level that the average person would not have, because of the number of my family members who have died. So, it’s amazing what one person can bring to that table, such a vast area of participation. So, I like, the notion of lived experience, you know. And, we all have lived experience. Even the doctor that’s doing the research, they have lived experience. So, there’s nobody that doesn’t have it. We all come with lived experience. And, so, I like that term. It kind of puts us all on the same playing field at some point.

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