Karen shares two different experiences about how her involvement was determined

Transcript

In this case, I had gone to a number of meetings and I had never got a sense of where this was going? What a tall part I would be playing. It just never got there. Like, it seems like, he was discussing his project and, stuff and, you were just sort of left sitting at the table. I kept thinking “Where is the point where you are inviting me to be part of this?” Whereas, in the first instance I went and, right away it was explained that I was part of this process. And, that we were going to, just what the issue was that they were looking at and, would be wanting to brainstorm around this issue to see if we could come up with a solution. And, they wanted to hear from me on, you know, how I could see that problem. Could I think of solutions? Or, what problems would I think that they, that a person would encounter?

So, right from the minute I stepped into the room, that opportunity was offered, you know. And, it was a learning process for me because I didn’t know much about what they wanted. So, it took me a little while, but they would put us in little groups for discussion. So, you were always a patient partner, a clinician, like, a doctor and, somebody on policy or, research, altogether in little groups. So, we would discuss these things that they were, questions they had put up there. And, then, we’d all come back and sort of report on that. And, it was quite lovely. Sometimes I reported back to the group and, sometimes, somebody else did. So, on that level too, if you were comfortable doing the report back to the group, they invited you to do that.

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