Challenging Experiences – Martin


Martin thinks it is unfair to make assumptions about the breadth of patient partners' knowledge


Yeah, I think one could be the very sort of high level of technicality. And again, it’s one thing which was very impressive, and I was absolutely surprised to some extent, was that often we would think of non-formally-trained partners as that they don’t have the knowledge. Which is wrong, in particular when it comes to parents of patients. They often know more than some of the clinicians. And they also have a fairly good knowledge of the molecular understanding of how the disease might be progressing. So one way will be not to assume that the patients don’t know anything, because it’s clearly not true anymore. In the age of the internet, it’s not true.

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