Nicole’s research group used a survey to capture feedback from team members about how they were working together
Transcript
Yeah, so we did three evaluation surveys which was recommended to us by our SPOR Support person; so we did one at the beginning, in the middle and at the end and it was very positive. We had everybody complete them who worked together, and yeah, it showed – I think it showed overall all the contributions that were made to our research by our patient partners. And then also things that they learned from us, and then also showed us ways we could improve in the future moving forward. So definitely it was a worthwhile activity and I think that it should be encouraged for all teams to do that because then maybe there would be more of an evidence-base for engaging patient partners.
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- Measuring Impact of Partnership – NicoleNicole’s research group used a survey to capture feedback from team members about how they were working together
- Impact on Research – NicolePatient partners were key to designing the timing and format of patient information, says Nicole.
- Balancing time and commitments – NicoleAs a researcher, Nicole arranged meetings around patients’ availabilities
- Advice to others – NicoleResearchers should prioritize true partnerships and genuinely listen to patients suggests Nicole
- Relationship building – NicoleNicole suggests having a team lead to act as the point person for patient partners
- Role determination – NicoleCo-designing the terms of reference worked really well for Nicole’s research team
- Developing partnerships – NicolePosting an ad on a hospital website was one way that Nicole’s team searched for patient partners