Julie suggests that teams should consider options for engagement together

Transcript

Patient partnership is a mosaic and there has to be a multitude of approaches, I think both in respect to the patient partner but also to the researcher and I talk about – you know, oftentimes when I’m talking to leaders in health care and I’ll include researchers in that, pick one thing. Pick the one next thing that you can do to facilitate better collaboration with patient partners. It doesn’t have to be throughout the entire research project that you’re working on with a very, you know, robust and longitudinal patient partnership framework. Maybe it’s one thing and then the next time pick one more thing and start to grow and expand that. 

I think the same advice goes for patient partners. I might not be ready to, you know, fully commit to a two or three year research project but I might be willing to sit down with a team of researchers and figure out what is the question. What are we looking at doing here? What is the purpose or the objective of the work and work in a short term capacity on that. Or I might be willing to be – as I have before to be a study participant and I see that again as another short term opportunity. So I think there’s space for all of us in this either from a long term commitment perspective or from short term commitments. I think it’s looking at it together and deciding together what the best approach is. 

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