In Suzanne’s role as a patient advisor, she helped to create online training videos
Transcript
So, but now, as I was saying, we are in the process of actually working on and creating some training videos, so that other people who may want to join the drug policy research network committee, or might want to be involved in patient research on their own in some other way. These training videos will help, hopefully, will help explain both what we are doing and how all patients can play a role, if they choose, in patient-oriented research to get their concerns and their focuses and their questions legitimised and become part of the mainstream medical research.
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- Learning From Others – SuzanneSuzanne learned that she could contribute as a patient partner in many different ways
- Supports needed – SuzanneSuzanne would like to learn more about how to read and interpret research data
- Balancing time and commitments – SuzanneFor Suzanne, participation has been manageable but wishes there was more time
- Defining partnerships – SuzanneSuzanne prefers there were common terms used for patient partners
- Path to involvement – SuzanneIn Suzanne’s role as a patient advisor, she helped to create online training videos