Christiane has to check-up regularly on how the facility is caring for her husband.
Transcript
And you have to be there regularly, because… some stupid things happen, it doesn’t make sense. One day last week—it was very, very hot—a long sleeve shirt and a tank top under. He has some nice short sleeve shirts. So, I had to hide his long sleeve shirts. And the tank tops, I hid them all. Another day, I arrive and… I go to put his socks in the clothes hamper − winter pyjamas. He was sleeping with long sleeve, winter pyjamas, flannel pants, and the top is in thick cotton. But I said, “What this? What’s going on in their heads?” I have to call them regularly. I spoke with them again this morning.
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- Legal issues -ChristianeGetting a mandate in case of incapacity costs a lot of money, which Christiane is unable to pay at this moment.
- The future and caregiving – ChristianeChristiane knows she needs a break; she worries about what will happen to her husband if she gets sick.
- Support from family and friends – ChristianeChristiane finds it difficult to ask friends for help, especially since she is not able to pay them.
- Social impact and lifestyle changes – ChristianeChristiane feels isolated because it seems that her friends don’t want to visit anymore.
- Resources – ChristianeThanks to arrangements made possible by her support group, Christiane is able to attend conferences and other activities organized by the caregivers group.
- Providing support – ChristianeOne weekend, Christiane had to move her husband in bed. And with her back problem, she wonders what might happen if she had to do it again.
- Navigating the system – ChristianeChristiane had to make many phone calls to arrange for things like a wheelchair and home care support.
- Interaction with professionals – ChristianeChristiane told her social worker about a solution she found herself.
- Hospitals and facilities (2) – ChristianeChristiane has to check-up regularly on how the facility is caring for her husband.
- Hospitals and facilities – ChristianeChristiane struggled with the decision to move her husband to a facility; her parents helped her make the decision.