Christiane knows she needs a break; she worries about what will happen to her husband if she gets sick.
Transcript
It’s like yesterday, I went out. I went to my sister-in-law to clear my head, and I had someone to care for him, well I didn’t… I fell asleep at 2:30 a.m. but at 3:30 a.m. I was wide awake and I was watching the clock. At this rate, I won’t tough it out for long. This is why I say, “It is absolutely crucial that I have another respite.” And they do not tell you how many days per month, per year you have the right to, which means you refrain from taking too many days. “All of a sudden I need more.” Because my concern is if I get sick, what will happen to him?
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- Legal issues -ChristianeGetting a mandate in case of incapacity costs a lot of money, which Christiane is unable to pay at this moment.
- The future and caregiving – ChristianeChristiane knows she needs a break; she worries about what will happen to her husband if she gets sick.
- Support from family and friends – ChristianeChristiane finds it difficult to ask friends for help, especially since she is not able to pay them.
- Social impact and lifestyle changes – ChristianeChristiane feels isolated because it seems that her friends don’t want to visit anymore.
- Resources – ChristianeThanks to arrangements made possible by her support group, Christiane is able to attend conferences and other activities organized by the caregivers group.
- Providing support – ChristianeOne weekend, Christiane had to move her husband in bed. And with her back problem, she wonders what might happen if she had to do it again.
- Navigating the system – ChristianeChristiane had to make many phone calls to arrange for things like a wheelchair and home care support.
- Interaction with professionals – ChristianeChristiane told her social worker about a solution she found herself.
- Hospitals and facilities (2) – ChristianeChristiane has to check-up regularly on how the facility is caring for her husband.
- Hospitals and facilities – ChristianeChristiane struggled with the decision to move her husband to a facility; her parents helped her make the decision.