Rowdyneko’s husband wants to keep things as normal as possible. She feels he doesn’t fully accept his situation.
It’s a hard thing, because he wants to keep things sort of as normal as possible. For instance, we’ve got a truck sitting out there. I would sell the truck. I mean, he’s not driving, can’t drive, but he has a fit if I suggest selling the truck because that’s, because he wants to hang onto that as a possibility. We have an RV sitting over here that’s going to deteriorate if it sits there much longer. But again, if I suggest selling it because we’re not going to be using it, you know. So, I mean, so far I’ve just let that stuff go and not pushed it because I guess you have to hang on. It’s funny I mean, because the kids and I are, we’re both totally at accepting of the situation that I don’t think he can—well my son, my youngest son, figures he’s going to die in the next couple of months. And so, we’re, the kids and I, are very realistic about the future. And probably my husband is the least realistic about the future, but maybe that’s normal. But it’s sometimes hard to deal with because we’re almost at a different place than he is, and wanting to move on with certain things that he’s not ready to move on with. And that sometimes causes conflict.
- Resources – RowdynekoRowdyneko told other patients about a free door-to-door transportation service to use instead of private ambulances.
- Providing support – RowdynekoAt times, Rowdyneko was asked to do medical tasks that she did not feel comfortable doing.
- Advice for friends and family – RowdynekoRowdyneko notices that people don’t call her or come over any more. She suggests that family and friends stay in contact.
- Financial impact 2 – RowdynekoRowdyneko is thankful that her husband’s medications are covered by the palliative pharmacare program.
- Financial impact – RowdynekoWithout extended medical coverage, Rowdyneko would have been under much more financial pressure.
- Uncovering how and why caregivers care – RowdynekoRowdyneko would love it if caregiving were fun, or brought her closer to her husband. Unfortunately, this is not the case for her.
- Travelling, holidays and respite – RowdynekoWhen Rowdyneko leaves for a cruise, her family tries not to disturb her.
- Support from family and friends – RowdynekoRowdyneko doesn't do the caregiving willingly, but her son surprises her every day with his unselfish support.
- Society and caregiving – RowdynekoRowdyneko has noticed that younger caregivers often have to stop working. There are not enough resources or support for them.
- Interaction with professionals – RowdynekoBeing expected to do things that you are unable to do is frustrating for Rowdyneko.