It is difficult to work while caring for someone at home. Sheni dealt with situations that she felt most people never have to deal with.
So I don’t know, it was just, it was a problem in a lot of ways. Like, I just found it really difficult to manage all this stuff. I had so many times where people would call me. One time—my husband takes the mobility bus to go to his day program and they can’t seem… well, I had to sign a waiver saying that it would… like, he doesn’t have to do the hand-to-hand transfer, that he’s quite fine being dropped off at the house and nobody has to be here when he gets here. Well one day, they phoned me at work; nobody was home, the door was locked, and he had forgotten his key, so they phoned me at work. I’m downtown; they’re way out […] in the suburbs, and they’re like, “Well, there’s nobody here and he can’t get in.” I’m like, “Okay. Well, I’m at work. Even if I leave now it’s going to take me like an hour and a half to get home. What do you want me to do?” Like, you find yourselves in these impossible situations and these people are… they wanted me to waive my magic wand and solve the problem, and I really don’t know what to do. What do you suggest? “Well, we can keep him on the bus for a while.” Like, “Okay. Well then keep him on the bus,” or […] he just hangs out at the front of the house for a while, or he can take a walk to Loblaws—he does that all the time. Well, they wouldn’t have that; they wouldn’t hear of that, right. Eventually he ended up coming in through a window. But these are… you run into all kinds of really, like, situations that are really difficult that most people just never—people that aren’t in this situation dealing with these kinds of problems they, they never have to deal with these situations, and they can’t imagine how difficult it is.
More from: Sheni
- Trying to find the right balance – SheniWhen her husband was in the hospital, Sheni did all she could to help her children through this period.
- Support from family and friends – SheniSheni’s family-in-law did not offer any help. In fact, they made it harder for her.
- Social impact and lifestyle changes – SheniSheni notices that she has a lot less tolerance for other people’s minor problems and this has affected her friendships.
- Legal issues – SheniSheni’s power of attorney was revoked after her sister-in-law contacted the Public Guardian. Sheni thinks it is important to read up on the rules of power of attorney to avoid any issues.
- Interaction with professionals – SheniSheni describes two occasions where she had a disagreement with the doctors.
- Financial impact – SheniSheni and her husband had always been self-employed. In just a few weeks, they lost all their income.
- Impact on professional life and career 2 – SheniWhen her son started radiation therapy for his brain tumour, Sheni had to take time off work. Unfortunately, her manager was not very understanding.
- Impact on professional life and career – SheniIt is difficult to work while caring for someone at home. Sheni dealt with situations that she felt most people never have to deal with.
- Home care and live-in caregivers – SheniSheni found the live-in caregiver very helpful, especially since she could check-in with him at home during the day.
- Health system issues – SheniFor Sheni, it was impossible to work and find care for her husband.