Impact on professional life and career – Sheni


It is difficult to work while caring for someone at home. Sheni dealt with situations that she felt most people never have to deal with.


So I don’t know, it was just, it was a problem in a lot of ways. Like, I just found it really difficult to manage all this stuff. I had so many times where people would call me. One time—my husband takes the mobility bus to go to his day program and they can’t seem… well, I had to sign a waiver saying that it would… like, he doesn’t have to do the hand-to-hand transfer, that he’s quite fine being dropped off at the house and nobody has to be here when he gets here. Well one day, they phoned me at work; nobody was home, the door was locked, and he had forgotten his key, so they phoned me at work. I’m downtown; they’re way out […] in the suburbs, and they’re like, “Well, there’s nobody here and he can’t get in.” I’m like, “Okay. Well, I’m at work. Even if I leave now it’s going to take me like an hour and a half to get home. What do you want me to do?” Like, you find yourselves in these impossible situations and these people are… they wanted me to waive my magic wand and solve the problem, and I really don’t know what to do. What do you suggest? “Well, we can keep him on the bus for a while.” Like, “Okay. Well then keep him on the bus,” or […] he just hangs out at the front of the house for a while, or he can take a walk to Loblaws—he does that all the time. Well, they wouldn’t have that; they wouldn’t hear of that, right. Eventually he ended up coming in through a window. But these are… you run into all kinds of really, like, situations that are really difficult that most people just never—people that aren’t in this situation dealing with these kinds of problems they, they never have to deal with these situations, and they can’t imagine how difficult it is.

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