In this topic page, we discuss advice provided by patients and researchers for others who are interested, or already engaged in research partnerships. Advice from patients to researchers largely centered around soft skills, such as being genuinely open-minded and receptive to patients, but also included suggestions about how to find patients who would be interested in joining a research team. To read more about how researchers engaged with patients as partners in research, you can visit Developing Partnerships. Advice from researchers to patients was mainly about how to effectively communicate their experiences and perspectives with researchers. Overall, there were four kinds of advice mentioned by the people we interviewed:
- Advice related to ensuring clarity of roles and responsibilities within a partnership
- Descriptions of helpful character traits and attitudes
- Ways to find researchers or patients
- Advice to funding organizations or other administrative bodies
Feel free to jump to the following sections:
Clarity of roles and responsibilities for partners
Helpful character traits and attitudes
How to find the right researchers or patients to be involved with
Advice to funders
Clarity of roles and responsibilities for partners
Helpful character traits and attitudes
How to find the right researchers or patients to be involved with
Advice to funders