Most caregivers spoke openly about their future expectations or concerns, and many were living with some specific concerns for the future. For some, the future was rather negative while others said that their perception of the future had changed quite a bit or that they were living more in the moment because they couldn’t tell what the future might bring.
Preparing for future needs
Several caregivers were preparing for their care recipient’s future needs.
What will happen to me?
Several caregivers worried about their own situation, and what would happen to them if ever they would need care. The Smiths have no children and are worried about having to depend on ‘the system’. They were also concerned about their freedom to make end-of-life decisions for themselves. Sheni worries about the future and their finances; currently, she is not working while caring for her husband, which has a big financial impact.
What will happen to the care recipient?
Several caregivers worried about what may happen to their care recipients if something happens to them. Elaine said, “I want to survive him because that means that I’m still going to be here to look after him when he really needs it. I want to outlive him because that would be very hard for him, if I died.” Lorna has a similar concern and wonders who would look after her husband if something happens to her.
You can read more about this in When care changes over time.
Coping with worries and thoughts for the future
People approached their worries and thoughts about the future in different ways, some hopeful and some less so.